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Dr. Parker's Fibroids Blog

Very large fibroid

Hello Dr. Parker,

I get directed to your site every time I search for information on fibroids. I live in India, but I was hoping to get an opinion from you about the possibility of removal of my very large subserosal fibroid. On MRI it measures 12.3cm x 13cm. There are two small intramural fibroids (3 cm each).

I would be very obliged if you could give me some advice if the fibroids can be removed laparoscopically. I want to retain fertility and I am 32 years of age (unmarried).

Thanks,

A

A,

Yes, this fibroid can be removed laparoscopically by an experienced laparoscopic surgeon.  One other fibroid is subserosal and could also be removed. Also see:https://www.fibroidsecondopinion.com/laparoscopic-myomectomy/

I hope this is helpful.

Bill Parker, MD

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I am getting married soon and am too scared to have surgery.

I am 25 and am getting married this August. Last week I was diagnosed with 3 fibroids – 10cm, 3cm and 4cms (submucosal). I have fairly heavy periods but don’t get severe cramps. My periods are always on time. I am getting married soon and am too scared to have surgery. However I do want children in a couple of years.

Also, fibroids run in my family: my grandmother, mother and aunts all have them. My mother had to have it removed three times as it always grew back after surgery. I am worried the same thing may happen to me too 🙁

What advice do you have for me?

S.

S,

Surgery would only be necessary if the symptoms are very bothersome, or when you are ready to have children.  The submucous fibroid may decrease your fertility, but it may not and you should discuss the size and position of the fibroid with your doctor or a fertility specialist. Also see:  https://www.fibroidsecondopinion.com/fibroids-and-pregnancy/

The risk of needing another surgery for new fibroid growth after a myomectomy is about 25%, but genetics do have something to do with this.  I usually recommend surgery, if necessary, about 3-4 months before you are ready to get pregnant, so that no new fibroids will grow before you try to conceive.

If you do need surgery, you should get an opinion from a gynecologist who takes care of women with fibroids on a regular basis.

I hope this is helpful,

Bill Parker, MD

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I consulted with three doctors, all of whom recommended hysterectomy as my only option.

Dear Dr. Parker:

I am a 49 year old female recently diagnosed with multiple fibroids.  The largest is 17.0 x 10.6 cm. I also have several uterine masses “compatible with additional subserosal fibroids” and a thickened uterine wall compatible with numerous fibroids.

I consulted with three doctors, all of whom recommended hysterectomy as my only option.  I specifically asked about myomectomy but this was dismissed as “very bloody surgery” and not appropriate to my situation due to the size of my fibroids.  It was not until I saw your website that I realized any other option might be possible.

I am scheduled for surgery this Thursday morning. I would very much like to meet with you if this could be done quickly.  I am hesitant to cancel my surgery because the past two months have been utter hell.  The second doctor spoke at length about cancer, and since then I’ve been a nervous wreck.  I can’t stand the waiting and the uncertainty.

My mother is a breast cancer survivor, and my father is a colon cancer survivor and has prostate cancer.  After reading your website, I wonder if I should have some genetic testing done to decide whether or not it is advisable to keep my ovaries.  I wish I had seen all this sooner!

By the way, from the bottom of my heart, thank you for posting all this information and helping women educate themselves about their options.

Kind regards,

G.

Note: I called G and reviewed her situation and felt that myomectomy was very possible.  She cancelled her surgery and came to the office for a consultation.  Following an MRI and blood tests, I was very confident that cancer was not present and we scheduled her for surgery. I performed a laparoscopic myomectomy, the fibroid was benign and she has done extremely well following surgery.

See this page: https://www.fibroidsecondopinion.com/fibroids-and-cancer/

Bill Parker, MD

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Fibroids after C-section

I have a large fibroid, about the size of a grapefruit. I am in my late forties. I haven’t been to see my gynecologist in well over a year. He has recommended a hysterectomy. I wouldn’t be too bothered by this but have had 2 c-sections in the past and dread the thought of additional scarring. However, I have a lot of discomfort such as stinging pains like pin pricks, and an enlarged uterus. Should I toughen up and just get the surgery or go for a pap smear and try to hold off for menopause. Any help you could offer would be appreciated. Also, I wish in the future that more research could be done for a medication for fibroids to help other women. Thank You.

T.

T,

The fibroid will shrink about 50% once you get to menopause (average age is 52).  A skilled laparoscopic surgeon should be able to remove either the fibroid (laparoscopic myomectomy) or the uterus (laparoscopic hysterectomy) if that is what you want. Either of these procedures involves a 0-1 night hospital stay and a 2 week recovery to normal activity. If your symptoms are bothersome, you should consider getting a second opinion.  I agree – a lot more research is needed in every aspect of taking care of women with fibroids.

Bill Parker, MD

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Fibroids: anemia and treatment options/ Micronor pills

I am a 36 year old female with a 7cm uterine fibroid that has caused me to have anemia from having heavy (also painful) menstrual cycles. My hemoglobin has gone from 9.8 to 12.5 in one month. My gynecologist wants me to start Ponstel and Micronor pills (progesterone) to help with my symptoms and in 3 months repeat an ultrasound to see if the fibroid has changed in size.

My question is will progesterone only Micronor pills help to decrease or increase the size of the fibroid. I have done research online and found out that the Micronor might increase the size of the fibroid, is this true? I am factor 5 Leiden positive (increased risk of blood clotting) so I can’t take estrogen-containing pills.

What would be the least invasive type surgery option for me if fertility is not an issue? Is uterine fibroid embolization or the new MRI focused ultrasound an option?  I prefer non-surgical safe options if available but would consider surgery if it is the best thing for me.

Can one just live with a 7cm size fibroid with corrected anemia or can the fibroid increase in size or anemia get worse?  Can one live with fibroids this size for a long time?  Is 7 cm considered small, medium, or large in size?

Thank you.

A.

A,

Studies show that most women can take birth control pills without any increase size of the fibroids.  The studies have been done for combination (estrogen and progesterone) pills, but not specifically for Micronor.  Since Micronor contains a similar progestin to other pills, it is likely to be OK, but checking your uterus with an ultrasound in a few months is a reasonable way to know if it is staying the same size.

From what you say here, you should be a candidate for embolization.  However, we do not recommend this for women who wish to maintain their fertility.   Focused ultrasound might be an option, but we do not have any studies to tell us whether this works well for bleeding or not.

7 cm is medium size and could likely be removed laparoscopically by a gynecologist trained to do this.  If you continue to take iron and maintain your hemoglobin, then you could live with the fibroid.  We cannot predict fibroid growth, so if you chose to just observe your situation you should see a gynecologist a few times a year to check on the size and check on your hemoglobin.

I hope this is helpful,

Bill Parker, MD

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45 years old-Heavy bleeding due to fibroid – do not want a hysterectomy

I am a 45 year woman who has never had a child (I have been pregnant several times but never full-term) I am very active and very healthy. I live in the US Virgin Islands and I swim and do yoga daily.

For the past 6 months I have been bleeding very, very heavy – with large blood clots. Once I drove myself to the hospital because the bleeding was so severe. For the past 4-5 moths I have been taking 5-6 birth control pills a day to control the bleeding. My GYN says that taking these many BC pills is very bad and I have been diagnosed with a fairly large fibroid.

It has been suggested that I have a hysterectomy to control and stop the bleeding. I DO NOT WANT a hysterectomy – I checked on having the UAE procedure (blocking the blood supply to the fibroids) but was told the fibroid in my uterus is too large. I do not want to lose my uterus. Every woman that I know that has had a hysterectomy is overweight and has a large stomach. I know that sounds vain but having a large stomach and being overweight are unhealthy.

I just want to die right now! I feel so old and so horrible I cannot stop crying. My other half is 17 years older than me and he is a surgeon in St. Thomas and he wants me to have a hysterectomy – I DO NOT- I would rather bleed everyday than take my uterus out. Plus I have heard that Drs. just sometimes go ahead and take the ovaries also. I don’t know what to do – I want to just die – I feel old and I have nothing to look forward to. This feels like the end. I need some advice. What are my alternatives? Please.

W.

W,

A myomectomy is always possible and a hysterectomy should not be your only option from what you describe here. You should get a second opinion from a gynecologist who is comfortable with myomectomy surgery. A myomectomy sounds like a very good solution for your symptoms.

Bill Parker, MD

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How Do Women Feel about Hysterectomy and Myomectomy?

A Qualitative Comparison of Women’s Attitudes Towards Hysterectomy and Myomectomy
Julie Askew PhD. Healthcare for Women International 2009;30:728-42.

Study: Eighteen women, ages 31-49, who suffered from symptoms of fibroids and who had undergone a hysterectomy or myomectomy in the past 2 years were interviewed by the author. All of the women had further education or specialist professional training after high school.

Findings: Women choosing myomectomy believed the uterus had a purpose other than fertility. They were more likely to not trust their doctor’s recommendation to have a hysterectomy, and more likely to have sought out other gynecologists’ opinions. A similar number of male and female doctors suggested hysterectomy. Patients were more likely to have traveled to another area or state, and to pay some expenses out of pocket, in order to obtain myomectomy surgery.

Women who had a hysterectomy were more likely to have trusted what their regular gynecologist told them and had that doctor perform the surgery. Some of these women, in hindsight, felt that they should have sought out more information before having a hysterectomy. One reason women chose hysterectomy was because they believed their gynecologist’s comment that “the fibroids will just grow back” after a myomectomy.

Conclusions: The author concluded that women need to have access to more reliable information. “Information sources should include specialists other than one’s regular gynecologist, particularly if alternatives to hysterectomy are outside of the gynecologist’s preferences or areas of skill.” The internet played an important role for women accessing information.

Dr. Parker’s Comment: I think many women will identify with the points made in this study. I often see women for a second (or third, or fourth) opinion who have been told to have a hysterectomy based on uninformed or outdated information. Some doctors will not recommend a procedure they do not know how to do, or a procedure that may be more difficult for them to perform. Once fibroids are removed they do not “grow back” and the chance of new fibroids growing is very small.
See: https://www.fibroidsecondopinion.com/can-fibroids-grow/

If you are recommended to have a hysterectomy (or any surgical procedure) you should ask about alternatives available, and whether your doctor knows how to perform them or not. The internet, when used carefully, can be an excellent source of information.

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Submucous Fibroids and Fertility

I am 25 and am getting married this August. Last week I was diagnosed with 3 fibroids being 10cm, 3cm and 4cms (submucosal). I have fairly heavy periods but don’t get severe cramps. My periods are always on time. I am getting married in August and am too scared to have surgery. However I do want children in a couple of years. What advice do you have for me?

S.

S,

Surgery would only be necessary if the symptoms are very bothersome, or when you are ready to have children. The submucous fibroid may decrease your fertility, but it may not and you should discuss the size and position of the fibroid with your doctor or a fertility specialist. When it is time for surgery, you should get an opinion from a gynecologist who takes care of women with fibroids on a regular basis.

I hope this is helpful,

Bill Parker, MD

View all blog archives

Large Fibroids and Cancer

Dear Dr. Parker:

I am a 49 year old female recently diagnosed with multiple fibroids. The largest is 17.0 x 10.6 cm transverse and 14.6 cranial/caudal. Also several uterine masses “compatible w/ additional subserosal fibroids” and a thickened uterine wall compatible w/ numerous leiomyomata.

I consulted w/ three doctors, all of whom recommended hysterectomy as my only option. I specifically asked about myomectomy but this was dismissed as “very bloody surgery” and not appropriate to my situation due to the size of my fibroids. It was not until I saw your website that I realized any other option might be possible.

I am scheduled for surgery this Thursday morning. I would very much like to meet with you if this could be done quickly. I am hesitant to cancel my surgery because the past two months have been utter hell. The second doctor spoke at length about cancer, and since then I’ve been a nervous wreck. I can’t stand the waiting and the uncertainty.

My mother is a breast cancer (post-menopausal) survivor, and my father is a colon cancer survivor and has prostate cancer. (My sister has a uterine fibroid.) After reading your website, I wonder if I should have some genetic testing done to decide whether or not it is advisable to keep my ovaries. I wish I had seen all this sooner!
By the way, from the bottom of my heart, thank you for posting all this information, and helping women educate themselves about their options.

Kind regards,
GS

Note: GS came to see me in Santa Monica about 2 weeks ago and we determined with an MRI that she had a pedunculated external fibroid and a fibroid inside her uterine cavity, causing heavy bleeding. A blood test for LDH was normal, making uterine sarcoma extremely unlikely. Therefore, one week ago GS had an abdominal myomectomy with removal of 4 fibroids. The pathology report showed typical, benign fibroids. Her recovery is going well.

Bill Parker, MD

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Everyone has an opinion – which is best?

I am a 46 year old women who has had fibroids about 15 years. They now have disrupted my life significantly. My uterus measures 13.0 x 6.7 x 9, I have approx. 12-16 fibroids from very small to 7 being 2.4 cm or larger. I have anemia and have been on prescription iron for 2 years. I have significant pain for 2-4 days a month, but my worst symptom is the excessive bleeding. For 72 hours, I cannot leave my home. My pad plus super tampon fill immediately and when I stand up, I gush.

One gynecologist recommended hysterectomy and my current gynecologist has recommended 6 months of a depo-lupron shots or embolization. I am considering the depo shots as I have a long-planned cruise w/ my family the beginning of April and worry that I will be cabin-bound for 1/2 of the trip – I am worried that the menopausal reactions to these shots will also interfere w/ my quality of life. I am scheduled to meet w/ the radiologist next week to consult about the embolization, but worried that the 5 weeks from now until vacation will not be enough recovery. I just don’t know what to do – the bleeding is consuming how I live.

R.

R,

Embolization certainly sounds like a reasonable option and most women recover in a few weeks. But, discuss this with the interventional radiologist.

The Lupron will cause heavy bleeding about two weeks after the shot, but then bleeding should stop. There are definitely side-effects: hot flashes, trouble sleeping, vaginal dryness, and they will last until a month after the last injection. The interventional radiologist will not want you to take the Lupron, since it makes the UAE procedure more difficult to do. So, discuss this with him as well. Abdominal myomectomy is also an option to remove all the fibroids.

I hope this is helpful,

Bill Parker, MD

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Disclaimer: The ideas, procedures and suggestions contained on this web site are not intended as a substitute for consulting with your physician. All matters regarding your health require medical supervision.

Fibroid Doctor William H. Parker

Dr. William H. Parker is a board-certified Fellow in the American College of Obstetricians and Gynecologists. Dr. Parker is an internationally recognized expert in fibroid surgery and research. Based in San Diego, California, he is considered one of the best fibroid surgeons for abdominal and laparoscopic myomectomy in the United States and abroad. He has been chosen for Best Doctors in America and Top Doctors every year beginning in the late 90's.

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